Johns Hopkins EpiWatch™: Track Your Epilepsy Seizures. Track Your Treatment.
EpiWatch is an Apple Watch app and research study for persons over 16 with epilepsy. Those with epilepsy can use EpiWatch to track their seizures, potential seizure triggers, medications, and share the data with Johns Hopkins researchers. The movement and heart rate data collected with EpiWatch’s continuous tracking functionality is actively being used in the creation of an app to detect seizures. EpiWatch currently enables participants to send a message to a family member or caregiver to let them know when they are experiencing a seizure. Participants can view information they enter into the
app at any time. A dashboard allows for summary data to be viewed with caregivers and physicians.
EpiWatch is not a seizure detector. You should not rely on EpiWatch to get help for your seizures. Learn more at www.hopkinsmedicine.org/epiwatch.
How the App and Study Work
EpiWatch enables you to take surveys, enter daily journals and participate in other activities so you and Hopkins researchers can better understand your entire experience—your seizures, treatments and medication side effects. The app also includes a medication journal, as well as an interactive game to measure a seizure’s impact on your responsiveness.
EpiWatch integrates with Health App to augment heart rate, accelerometer and gyroscope data collected by both iPhone and Apple Watch. Johns Hopkins researchers will use this data to measure changes in your heart rate and movement during a seizure.
You can participate if you are at least 16 years old, a U.S. resident and …
• Own an Apple Watch that is paired with iPhone running the latest version operating system.
• Have epilepsy and have had at least one seizure in the past year.
• Do not have any major learning or physical disabilities that would impair your ability to interact with the app while participating in this study. (NOTE: Family and caregivers may help you carry out some of the activities of the study.)
• Are able to open this app on Apple Watch at the beginning of at least some of your seizures. If you tend to experience auras, or warning sensations, you may be able to perform the tasks needed for this study. (NOTE: Family and caregivers may help you carry out some of the activities of the study.)
This app is designed for research and education purposes only. This app is not meant to provide medical advice, attention, or treatment.
Please note: SMS should not be depended upon by patients and their caregivers to get emergency help for seizures. Even though EpiWatch provides an SMS feature which can alert a caregiver using their mobile phone number, there are multiple factors that could impede, prevent or delay an SMS message alert from being received by the intended recipient.
Principal Investigator: Gregory Krauss, M.D. | IRB00077237
EpiWatch™ is a trademark of Johns Hopkins University